
Thursday, April 7, 2011
Cut me some slack!
I am feeling a little overwhelmed today. So I decided to blog. I don't know if anyone will read this, but frankly, I am just writing it to hopefully get some relief. Get out of my own head, so to speak. It seems as though almost immediately after I posted my last blog about trying to stay positive about the move, the whole world has almost crumbled down on me. It's almost like I keep hitting one road block after another after another. We have known since December 2nd where the AF was going to send us ~ Robins AFB in Georgia. Some of my friends know that it wasn't the assignment we were expecting, so it took David and I a few weeks to swallow it. We finally became content, I think, with the fact that we were moving (or maybe we just got busy and decided not to worry about it anymore, since it couldn't change anything!) Anyway, we got moved into our new house, tried to get settled, planned a small vacation to go visit our friends in Montgomery, AL followed by a quick trip to Robins to check things out, then a nice relaxing 3 day vacation at the beach. It was beautiful, I felt rested, I didn't have a care in the world. Once we were home and back to reality, I asked David to please check into what we need to do as far as moving. You see, our daughter is on EFMP (Exceptional Family Member Program) through the military because of her autism (PDD-NOS) diagnosis, ADHD, LD, and gross & fine motor delays. This program is designed so that the military family doesn't find themselves stationed somewhere that care is not available. I don't think it's designed to narrow the field of opportunity for our military member, but more to protect the family member. This would be our first move with her on this program and I had no idea what to expect, except that I had heard it becomes a bit cumbersome. David was not too into "checking into things" early, he felt the system needed to work itself out and that we didn't need to worry about things beyond our control. While I agreed with him, it's not my nature to just sit around and wait. I need answers...I need to feel "safe". Safe that my family won't have to live apart, safe that things will work out, safe that my husbands career will not be affected by the medical care our daughter needs. For the past 2 1/2 years or so, Taylor has received OT (Occupational Therapy) for 45 minutes two times a week where the focus is working on her fine and gross motor skills. While she has made leaps and bounds, she is still not caught up to where she needs to be. She has also received ABA (Applied Behavioral Analysis) Therapy three times a week for 2 hours each. This is a therapy designed for children on the autism spectrum to help with a variety of needs. Taylor's main need is social skills. They are helping her learn body language, social cues, how to interact with someone, when/what is appropriate type behavior, etc. Taylor sees everything in black and white. There is no gray area for her. In addition, we also have access to a child psychologist, if the need presents itself. And it has on a few occasions. With Taylor's spectrum diagnosis (PDD-NOS), she is also qualified to be on yet another program offered through Tri-Care. It's called ECHO (Extended Care Health Option). This is the program that allows her to receive ABA treatment. I did some research online to find a pediatric therapy location (for OT) and to look for a BCaBA (for ABA) in the local area. Since I wasn't having much luck, I decided to call her case manager at ECHO to just be sure there are services available in Macon, GA. The studies say that 1 in 10 kids are on the spectrum, so surely there would be services in an area of 65,000 people, right? After a few phone calls , messages, and transfers, I finally talked to the gal who would be her case manager when we move. Less than comforting news. She did not show anyone in Tri-Care receiving ABA in the area we would be moving, nor did she see a facility within a 90 mile radius. WHAT!?!?!?! The 90 mile radius is important because we've been told your assignment may get denied if you have a family member on EFMP and no services are available within 90 miles. But she did tell me that there were some in central florida and south carolona, and would look into it and let me know if one of them was willing to travel to us, or at least travel to within the 90 mile radius. Breath, breath, breath!!! David and I have decided to wait to panic about this, but I just can't help it. It's scary. Without the EFMP process completed, we can not make any plans for moving because we can't get official orders until that is approved. We can't book TLF, we can't go to TMO, we can't book a family vacation in between assignments. In addition, we are having battles about when David's report date is. We want to report Jul 31, they want us there Jul 19. David has an event with the military that will keep us here until the 15th of July. So now I am presented with 4 days to move, two of which are the weekend. I either have to pack the house alone (while my husband works 12 hours shifts ~ at night), pack the house prior to the event and have them put our stuff in storage, or pack the house several weeks prior and Taylor and move early, leaving David behind and setting up the new house alone. Of course, we can't plan ANY of this stuff without knowing the outcome of the EFMP review!!!! This also give us 4 days to get from one location to the next. David working nights up until the 15th, the drive 15 hours to our new location, and hopefully have 2 days to get our house, have TMO deliver our goods, have a change of command for David, and get settled ~ all without a vacation. Ugh. This is really too much stress. The moving is stressful enough without all these other factors involved. I just need some answers. I need to know what to do. I need to know everything will be ok. I need to know my family will be able to stay together. I need to know my husband will be able to keep his orginally assigned job, or at least get a comparable one. I dont' know what else to say. :"(
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Oh hon...I am so sorry. It sucks that everything has to become so difficult. I've never understood why they make the moving process so incredibly hard. When they assign you, they should be able to cut the orders right then and there...you shouldn't have to jump through hoops just because someone didn't do their job. Just know that there are many shoulders to lean on and that there are a lot of people who love you. Me included. :)
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